Mental health status and quality of life of people with disabilities in social isolation

Authors

  • Alan Patricio Silva aLaboratório de delineamento de Estudos e Escrita Científica, Centro Universitário FMABC, Santo André, SP, Brasil.
  • Leticia Maria Factore Pacheco aLaboratório de delineamento de Estudos e Escrita Científica, Centro Universitário FMABC, Santo André, SP, Brasil.
  • Francisco Leitão aLaboratório de Delineamento em Estudos e Escrita Científica, Centro Universitário FMABC, 09060-870 Santo André, SP, Brazil.
  • Matheus Paiva Emidio Cavalcanti aLaboratório de delineamento de Estudos e Escrita Científica, Centro Universitário FMABC, Santo André, SP, Brasil.
  • João Batista Francalino da Rocha aLaboratório de delineamento de Estudos e Escrita Científica, Centro Universitário FMABC, Santo André, SP, Brasil.
  • Sandra Dircinha Teixeira de Araújo Moraes aLaboratório de Delineamento em Estudos e Escrita Científica, Centro Universitário FMABC, 09060-870 Santo André, SP, Brazil; bCoordenadora do Programa de Residência Médica em Ginecologia e Obstetrícia da Secretaria Municipal de Saúde de Osaco-SP.Hospital Municipal e Maternidade Amador Aguiar
  • Italla Maria Pinheiro Bezerra fEnfermeira. Doutora em Ciências da Saúde pela Faculdade de Medicina do ABC. Professora do Curso de Graduação em Enfermagem da Escola Superior de Ciências da Santa Casa de Misericórdia de Vitória – EMESCAM, Vitória/Espírito Santo, Brasil.

DOI:

https://doi.org/10.36311/jhgd.v31.12619

Keywords:

health assessment, Covid-19 pandemic, mental health, quality of life, Occupational therapy

Abstract

Introduction: at this critical moment of the COVID -19 pandemic, we observe the social withdrawal and the break from the routine of individuals in society, for people with disabilities who need adequate support and a routine of more intense and effective activities may feel a greater need for care and attention of family support for solving everyday problems.

Objective: to identify factors associated with the impact of the pandemic on the quality of life of individuals with disabilities and their caregivers.

Methods: a virtual survey was carried out with parents and caregivers of people with disabilities to identify the main factors associated with the impact of the Pandemic on daily life and social relationships between family and community.

Results: of the parents and caregivers we had access to and answered the questionnaire, 90% are residents of the ABC region of São Paulo. Their children and adolescents with disabilities are between 4 and 18 years old. The main scores of caregivers on difficulties in care during the pandemic, 70% felt helpless at some point, 17% had difficulties in performing self-care activities, 42% had anguish and fear during the period, 83% have the greatest responsibility for household decisions, and about 50% can share those decisions.

Conclusion: the main complaints about the care of people with disabilities during the COVID-19 pandemic are related to the feeling of fear and anguish that affects decision-making and family relationships, which influences self-care activities and mental health of this population.

Downloads

Download data is not yet available.

References

Madabhavi I, Sarkar M, Kadakol N. COVID-19. A review. Monaldi Arch Chest Dis [Internet]. 14 de maio de 2020 [citado 1o de outubro de 2021]; 90 (2). Disponível em: https://www.monaldi-archives.org/index.php/macd/article/view/1298

Arber W, Braun W, Haas R, Henle W, Hofschneider PH, Jerne NK, et al. Current topics in microbiology and immunology: ergebnisse der mikrobiologie und immunitätsforschung volume 59. Softcover Reprint of the Original 1st 1972 ed. edição. Berlin, Heidelberg: Springer; 2011.

Wong G, Liu W, Liu Y, Zhou B, Bi Y, Gao GF. Mers, sars, and ebola: the role of super-spreaders in infectious disease. Cell Host Microbe. 14 de outubro de 2015; 18 (4): 398–401.

Long B, Brady WJ, Koyfman A, Gottlieb M. Cardiovascular complications in COVID-19. The American Journal of Emergency Medicine. julho de 2020; 38 (7): 1504–7.

Kochi AN, Tagliari AP, Forleo GB, Fassini GM, Tondo C. Cardiac and arrhythmic complications in patients with COVID-19. J Cardiovasc Electrophysiol. maio de 2020; 31 (5): 1003–8.

Judicialização da Saúde Pública [Internet]. [citado 1o de outubro de 2021]. Disponível em: https://clubedeautores.com.br/livro/judicializacao-da-saude-publica-2

Liporoni AAR de C. Os caminhos da participação e do controle social na saúde: estudo das realidades do Brasil e Espanha. 11 de junho de 2014 [citado 1o de outubro de 2021]; Disponível em: http://educapes.capes.gov.br/handle/11449/106131

Monteiro CB de M. Realidade Virtual na Paralisia Cerebral [Internet]. São Paulo; 2011. Disponível em: https://repositorio.ufsc.br/handle/123456789/127730

Pfefferbaum B, North CS. Mental health and the covid-19 pandemic. New England Journal of Medicine [Internet]. 13 de abril de 2020 [citado 1o de outubro de 2021]; Disponível em: https://www.nejm.org/doi/10.1056/NEJMp2008017

Almeida C, Luchmann L, Martelli C. A pandemia e seus impactos no Brasil. MARLAS. 30 de junho de 2020; 4 (1): 20.

Wengert M, Suzano D da S, Almeida MCS, Bernardo LDB. A importância da qualidade de vidaem pacientes hipertensos. In 2021 [citado 1o de outubro de 2021]. p. 21–32. Disponível em: http://www.editoracientifica.org/articles/code/201001851

Sette CP, Capitão CG. Investigação do suporte social e qualidade de vida em pacientes com câncer. SaudPesq. 2 de maio de 2018; 11 (1): 151.

Ciconelli RM. Tradução para o português e validação do questionário genérico de avaliação de qualidade de vida medical outcomes study 36-item short-form health survey (SF-36). 1997 [citado 1o de outubro de 2021]; Disponível em: https://repositorio.unifesp.br/handle/11600/15360

Bezerra A, Silva CEM da, Soares F, Silva JAM da. Fatores associados ao comportamento da população durante o isolamento social na pandemia de covid-19 [Internet]. 2020 abr [citado 1o de outubro de 2021]. Disponível em: https://preprints.scielo.org/index.php/scielo/preprint/view/123/version/128

Mikolajewska A, Witzenrath M. Ambulant erworbene Pneumonie bei Erwachsenen. Dtsch med Wochenschr. março de 2020; 145 (06): 359–70.

Alexandre J, Cracowski J-L, Richard V, Bouhanick B. Renin-angiotensin-aldosterone system and COVID-19 infection. Annales d’Endocrinologie. junho de 2020; 81 (2–3): 63–7.

Ma Y-F, Li W, Deng H-B, Wang L, Wang Y, Wang P-H, et al. Prevalence of depression and its association with quality of life in clinically stable patients with COVID-19. Journal of Affective Disorders. outubro de 2020; 275: 145–8.

Correction to Lancet Infectious Diseases 2020; published online April 29. https://doi.org/10.1016/ S1473-3099(20)30064-5. The Lancet Infectious Diseases. julho de 2020; 20 (7): e148.

Xing Y, Mo P, Xiao Y, Zhao O, Zhang Y, Wang F. Post-discharge surveillance and positive virus detection in two medical staff recovered from coronavirus disease 2019 (COVID-19), China, January to February 2020. Eurosurveillance [Internet]. 12 de março de 2020 [citado 1o de outubro de 2021]; 25 (10). Disponível em: https://www.eurosurveillance.org/content/10.2807/1560-7917.ES.2020.25.10.2000191

Abreu LC. The path of humanity in the pandemic of COVID-19: the choice of the realistic, optimist or pessimist scenario. J Hum Growth Dev. 2021; 31(1):05-08. DOI: 10.36311/jhgd.v31.11683

Ferreira T, Figueiredo TC, Bick MA, Langendorf TF, Padoin SMM, de Paula CC. Opportunities in child motor development at home: bibliometric and scientometric review. J Hum Growth Dev. 2021; 31(1):125-144. DOI: 10.36311/jhgd.v31.10691

Published

2021-12-01

Issue

Section

ORIGINAL ARTICLES